News ‘Her journey is uncharted’: 9-year-old Delaware girl with rare disease is beating the odds July 5, 2023Konner Metz, USA TODAY NETWORKComments Off on ‘Her journey is uncharted’: 9-year-old Delaware girl with rare disease is beating the odds Cassie DeChene was diagnosed with a rare genetic disease at 2 years old. Now, she and her family are inspiring others and pushing for change.